Resources for families living in the UK and Ireland

The UK and Ireland version of this guide was produced by TREAT-NMD (www.treat-nmd.eu). Please contact info(at)treat-nmd.eu or 0191 241 8605 with any questions. Additional copies can be obtained from TREAT-NMD or any of the patient organisations listed in the following sections.

Information based on consensus statement (published in January 2010)